IN THIS FAMILY NO ONE FIGHTS ALONE
When my daughter was about 2 years old in age, I started to notice that she was always hungry and constantly thirsty. She would bang her head off of anything solid and hard (walls, floors, tables, counters, doors, furniture, etc.). We could not figure out why she kept doing this each day and night. I was very concerned about this, so i took her to doctor after doctor without any results as to why she was doing all of this. Each doctor I took her to just kept saying the same thing, "She is acting like a normal 2 year old, and that we was just spoiling her.", but i knew deep down that this was not how a normal 2 year old acts. I decided to drive two and a half hours to the closest Endocrinologist to see if I could get better knowledge on whats going on with my daughter. After the Dr. there did multiple tests, they then determined that she had a very rare form of diabetes, which is know as Nephrogenic Diabetes Insipidus (NDI). We are trying to raise the awareness of this condition, because there is not a lot of information out there on what causes, or even what can help with this type of diabetes. If this form of diabetes is miss diagnosed to any child or adult, it could cause life long unknown medical issues that could have been prevented. So getting more information out there for this type of diabetes and the side affects for early warning is very important.
THE FIGHT FOR AWARENESS
Nephrogenic diabetes insipidus (NDI) is an inability to concentrate urine due to impaired renal tubule response to vasopressin (ADH), which leads to excretion of large amounts of dilute urine. It can be inherited or occur secondary to conditions that impair renal concentrating ability. Symptoms and signs include polyuria and those related to dehydration and hypernatremia. Diagnosis is based on measurement of urine osmolality changes after water deprivation and administration of exogenous vasopressin. Treatment consists of adequate free water intake, thiazide diuretics, NSAIDs, and a low-salt, low-protein diet.